Public Policy

HPCANYS has a strong advocacy program to promote policy, legislation, and regulation that support the Association’s mission to promote the availability and accessibility of quality hospice and palliative care for all persons in New York State confronted with life-limiting illness. HPCANYS’ State Legislative/Regulatory Committee and Federal Legislative/Regulatory Committee provide support for the Association’s advocacy activities.

HPCANYS Position Statements and Comments


HPCANYS’ Issue Briefs for 2018-19 Executive Budget Proposal

HPCANYS has produced several issue brief addressing proposals in the Executive Budget. Please use these documents to inform your local legislators. Contact us if you need more information!

Thank you to: Dan Ayres, Andrew Dickson, Dan Grady, Michael Kaminski, Dan Lowenstein, Laura Niland, Michael Rosenblut, Robin Stawasz and Amy Stern for coming to our February 6 Advocacy Day and bringing our message to the Legislature.

Issue Brief #1: 2-cent Opioid Surcharge
Issue Brief #2: Hospice Residence Rate
Issue Brief #3: Hospice in ALP
Issue Brief #4: Advanced Care Planning Promotion  



Governor Cuomo Unveils 2018-2019 State Budget

On Tuesday, January 16, Governor Andrew Cuomo released his 2018-2019 at an executive budget presentation at the State Museum. The State is faced with a $4.4 billion deficit which Cuomo plans to reduce through cuts and spending caps, however, the governor is not proposing any cuts in state aid to “core services.” For example, school aid is proposed to increase 3 percent and total Medicaid costs would increase 2.5 percent.

To counter the budget gap, Cuomo proposes to raise $1 billion in new revenue via new (or increased) taxes on opioids (hospice exempt), e-cigarettes, internet sales, and health insurance providers. He also proposes to create a $1 billion health care contingency fund to provide for a cushion against expected shortfalls in federal funding for Child Health Plus and the Essential programs.

HPCANYS is still reviewing the budget to parse out specific implications for hospice and palliative care providers. Click here to view the Health Care budget brief from the Executive Budget presentation.

National Hospice & Palliative Care Bills

Personalize Your Care Act of 2016 [HR 5555], sponsored by Congressmen Earl Blumenauer (D-OR) and Phil Roe (R-TN), authorizes an Advanced Illness Management and Choices Demonstration, which allows individuals with chronic and advanced illness to receive both conventional, curative treatments along with hospice and palliative care services.  The legislation also provides additional resources to educate consumers and providers about advance care planning, and requires that advance directives be included within a patient’s electronic health record in order to increase the likelihood that the documents are kept up-to-date and easy to locate.

Rural Access to Hospice Act [S 2786], sponsored by Senators Capito (R-WV) and Shaheen (D-NH) in the Senate and to be introduced this week by Congresswomen Jenkins (R-KS) and Congressman Ron Kind (D-WI) in the House , will address statutory barriers that restrict some patients’ primary care physician from becoming their attending physician during hospice care.

Care Planning Act [S 1549], sponsored by Senators Warner (D-VA) and Isakson (R-GA) creates a new Medicare benefit for care planning services offered by a hospice-like interdisciplinary team.  Research indicates that team-based care planning results in more comprehensive, individualized plans and that individuals who receive counseling are less likely to receive invasive treatments at the end-of-life. The legislation also authorizes a demonstration to offer concurrent hospice and palliative care for individuals with multiple, complex chronic disease and two or more limitations in activities of daily living.


CareFirst NY Access Director, Robin Stawasz with Nurses Patience Wulf and Britt Price

CareFirst NY Access Director, Robin Stawasz with Nurses Patience Wulf and Britt Price advocate for hospice on a visit to Washington DC

Contact Your Representatives

Legislative contacts are divided into two categories, state and national levels. Each of the following links will take you to a site where you can put in some information about your location (like your zip code) and find out who represents you in government.

New York State Legislative Contacts New York State Assembly Click on link and enter your address, city and zip code in the form on the page. You will then be provided a link to your representative’s website, where you will find email and telephone contact information. New York State Senate Click on the link and enter your address and zip code under “Find my Senator.” Your representative’s name will appear at the top of the page, and you can write an email directly from this page with the form provided.

National/Federal Legislative Contacts United States House of Representatives: Click on the link and search for your representative by entering your zip code. Your representative’s name will appear at the top of the page, and you can write an email by clicking on the envelope icon. New York State Senators: This page lists the email and telephone contact information for Chuck Schumer and Kristen Gillibrand, the two Senators who represent residents in New York State.Advocacy jeanne dennis