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 Links |
| Advance Care Planning |
| Allied Members |
| Associations and Organizations |
| Out-of-state referral sources for hospice, palliative care, pediatrics and other end-of-life associations and organizations. |
| Caregiver Resources |
| Links to caregiver resources. |
| Consumer Information |
| Find consumer information on various topics such as aging. |
| Emergency Preparedness Provider Resources |
| Family Health Care Decisions Act |
| Family Health Care Decisions Act (FHCDA) is a law that allows family members to make decisions regarding medical treatment for their loved ones who have lost the ability to make such decisions and who have not prepared an advance directive stating their wishes. The law includes many safeguards to ensure that the patient receives sound medical treatment and that decisions are made consistent with the patient's wishes and best interests. The FHCDA establishes a process for determining whether an adult patient without a health care proxy has decision-making capacity. If the patient’s physician and a consulting physician agree that the patient lacks the capacity to make health care decisions, the law establishes a priority list for choosing a person to be the surrogate decision maker. Anyone lower in the hierarchy (e.g., an adult child instead of a spouse) or in the same category (e.g., another sibling) can challenge the designation. Also, in the case of vulnerable patients, the choice of surrogate and that surrogate’s decisions may be subject to review. In July of 2011, New York State passed a new law expanding the FHCDA to include decisions regarding hospice care. Previously, the law had applied only to patients in general hospitals or residents in nursing homes, not to people at home, in assisted living facilities, or in hospice care. The new law allows surrogates to make decisions regarding hospice care, including the decision to elect hospice and consent to the hospice plan of care, regardless of where the decision is made and where the hospice care is provided. |
| Federal Regulations |
| HIPAA |
| With the new Federal laws in place regarding HIPAA standards, hospice programs will need the information to become compliant. Click on this category to get model extension forms, copys of the bills and other resources. |
| Hospice and Palliative Care for Children |
| This category provides resouces for the care of children who have a life-limiting illness. |
| Hospice Veteran Partnership |
| Medicaid |
| Medicare |
| New York State Department of Health Resources |
| Palliative Care Law in New York State |
| Physicians in Hospice and Palliative Medicine |
| Research |
| Web links to organizations providing research information on various end-of-life issues. |
| State and Federal Legislature |
| Click here to visit the NYS Assembly, Senate and Federal web pages for current legislative information. |