HPCANYS has a strong advocacy program to promote policy, legislation, and regulation that support the Association’s mission to promote the availability and accessibility of quality hospice and palliative care for all persons in New York State confronted with life-limiting illness. HPCANYS’ State Legislative/Regulatory Committee and Federal Legislative/Regulatory Committee provide support for the Association’s advocacy activities.
Joint Advocacy Day 2017
On February 7, 2017, approximately 90 “champions” gathered at the Empire State Plaza in Albany to support the joint Advocacy Day sponsored by LeadingAge NY, HPCANYS and the Adult Day Health Care Council. While many members were successful in meeting with their elected representative to discuss issues of concern to hospice and palliative care providers, we understand that not all of you who wanted to could make it to Albany. We encourage you to make appointments in your representatives’ district offices, and use our Talking Points to bolster your message. Use this opportunity to illustrate your message with stories about your own program. If you need any assistance with materials or message, please contact us at 518-446-1483 and we’d be happy to help!
On July 18-19, 2016, over 240 hospice advocates from across the country convened in Washington, D.C. for the Hospice Action Network’s 2016 Advocacy Intensive. Hospice advocates were on Capitol Hill to meet with policymakers and discuss legislative/policy issues that will impact the hospice community, including:
Personalize Your Care Act of 2016 [HR 5555], sponsored by Congressmen Earl Blumenauer (D-OR) and Phil Roe (R-TN), authorizes an Advanced Illness Management and Choices Demonstration, which allows individuals with chronic and advanced illness to receive both conventional, curative treatments along with hospice and palliative care services. The legislation also provides additional resources to educate consumers and providers about advance care planning, and requires that advance directives be included within a patient’s electronic health record in order to increase the likelihood that the documents are kept up-to-date and easy to locate.
Rural Access to Hospice Act [S 2786], sponsored by Senators Capito (R-WV) and Shaheen (D-NH) in the Senate and to be introduced this week by Congresswomen Jenkins (R-KS) and Congressman Ron Kind (D-WI) in the House , will address statutory barriers that restrict some patients’ primary care physician from becoming their attending physician during hospice care.
Care Planning Act [S 1549], sponsored by Senators Warner (D-VA) and Isakson (R-GA) creates a new Medicare benefit for care planning services offered by a hospice-like interdisciplinary team. Research indicates that team-based care planning results in more comprehensive, individualized plans and that individuals who receive counseling are less likely to receive invasive treatments at the end-of-life. The legislation also authorizes a demonstration to offer concurrent hospice and palliative care for individuals with multiple, complex chronic disease and two or more limitations in activities of daily living.
We are happy to report that there were 18 advocates from New York hospices, one of the largest (but not the largest) delegations there. New York delegates also adopted the President of the hospice association from Puerto Rico who was an honorary NY delegate for the day. Delegates made 17 visits to 15 different House of Representative members and both of the NY Senators. All given a great reception and we are very grateful for the support of our congress members.
During the Advocacy Intensive, the Advocacy Innovator Award is presented by the Hospice Action Network (HAN) to a hospice that exhibits exemplary advocacy efforts. This year’s recipient of the Advocacy Innovator Award is CareFirst in Elmira, New York. CareFirst has built and sustained a successful relationship with Representative Tom Reed, inviting him to visit their program and maintaining contact with the Congressman and his staff. CareFirst is honored to be recognized as the winner of the Advocacy Innovator Award. This award recognizes the determination of our staff, volunteers and board to further the mission of hospice through advocacy. This award recognizes the determination of our staff, volunteers and board to further the mission of hospice through advocacy. We thank HAN for their support and encouragement, and certainly for this award,” says CareFirst CEO Mary Ann Starbuck. “We would be remiss not to also acknowledge Congressman Tom Reed and his staff for their exceptional working relationship with both CareFirst and HAN.”
Legislative and Regulatory Alerts
- OIG Issues Report on Hospice in Assisted Living
- NYS Bill S.2486/A.4274 Delays e-prescribing implementation
Contact Your Representatives
Legislative contacts are divided into two categories, state and national levels. Each of the following links will take you to a site where you can put in some information about your location (like your zip code) and find out who represents you in government.
New York State Legislative Contacts New York State Assembly Click on link and enter your address, city and zip code in the form on the page. You will then be provided a link to your representative’s website, where you will find email and telephone contact information. New York State Senate Click on the link and enter your address and zip code under “Find my Senator.” Your representative’s name will appear at the top of the page, and you can write an email directly from this page with the form provided.
National/Federal Legislative Contacts United States House of Representatives: Click on the link and search for your representative by entering your zip code. Your representative’s name will appear at the top of the page, and you can write an email by clicking on the envelope icon. New York State Senators: This page lists the email and telephone contact information for Chuck Schumer and Kristen Gillibrand, the two Senators who represent residents in New York State.