Advance Care Planning
Planning end-of-life care is a complex matter. Although it is hard to talk about the final phase of life, it can be a great gift to our family and loved ones to prepare them in advance for the sometimes difficult and distressing decisions that must be made. Here you will find information about planning for your care if you can no longer speak for yourself by using 'Advance directives.' Advanced directives are a way of making your voice heard when you can no longer speak. They allow you to appoint someone to make your health care decisions for you when you no longer can and to administer or withhold treatment and procedures. Advance directives are not just for the elderly. All people who desire to direct their medical care in the future should complete an advance directive.
Allied Members
Click here for a list of HPCANYS' Allied Members including a description of their services as well as their contact information. Select the "Join Now" button on the home page ribbon for information on becoming an Allied Member or contact us at
Associations and Organizations
Out-of-state referral sources for hospice, palliative care, pediatrics and other end-of-life associations and organizations.
Caregiver Resources
This section includes the following links to caregiver resources: Caregiver Action Network; Health Insurance Information, Counseling and Assistance; Healthcare Communication Project; and Todays Caregiver online magazine.
Consumer Information
Individuals facing serious life-threatening illness and approaching death deserve to be treated with dignity, respect and compassion and to receive care that is focused on the individualís goals for care. Families need and deserve to receive support. To achieve their goals, individuals need to plan ahead, know their choices, make sound decisions and share their wishes with their loved ones and health care professionals. This section includes information from the American Hospice Foundation, Assuring Your Wishes (help with advance directives) and Compassion and Support at the End of Life. These resources aim to educate and empower patients, families, health care and other professionals to accomplish this goal.
Emergency Preparedness Provider Resources
Family Health Care Decisions Act
Family Health Care Decisions Act (FHCDA) is a law that allows family members to make decisions regarding medical treatment for their loved ones who have lost the ability to make such decisions and who have not prepared an advance directive stating their wishes. The law includes many safeguards to ensure that the patient receives sound medical treatment and that decisions are made consistent with the patient's wishes and best interests.
The FHCDA establishes a process for determining whether an adult patient without a health care proxy has decision-making capacity. If the patientís physician and a consulting physician agree that the patient lacks the capacity to make health care decisions, the law establishes a priority list for choosing a person to be the surrogate decision maker. Anyone lower in the hierarchy (e.g., an adult child instead of a spouse) or in the same category (e.g., another sibling) can challenge the designation. Also, in the case of vulnerable patients, the choice of surrogate and that surrogateís decisions may be subject to review.
In July of 2011, New York State passed a new law expanding the FHCDA to include decisions regarding hospice care. Previously, the law had applied only to patients in general hospitals or residents in nursing homes, not to people at home, in assisted living facilities, or in hospice care. The new law allows surrogates to make decisions regarding hospice care, including the decision to elect hospice and consent to the hospice plan of care, regardless of where the decision is made and where the hospice care is provided.
Federal Regulations
With the new Federal laws in place regarding HIPAA standards, hospice programs will need the information to become compliant. Click on this category to get model extension forms, copys of the bills and other resources.
Hospice and Palliative Care for Children
This category provides resouces for the care of children who have a life-limiting illness.
Hospice Veteran Partnership
New York State Department of Health Resources
Palliative Care Law in New York State
HPCANYS places a strong focus on public engagement and community outreach to assure that all residents of New York State are provided information and resources about what palliative care is, how it may benefit them or loved ones who are living with a life limiting or chronic illness. Here you will find updated information, current news and resources, answers to common questions and the ability search for a palliative care provider in your geographical location.
Physicians in Hospice and Palliative Medicine
Web links to organizations providing research information on various end-of-life issues.
State and Federal Legislature
Click here to visit the NYS Assembly, Senate and Federal web pages for current legislative information.