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Advance Care Planning
Planning end-of-life care is a complex matter. Although it is hard to talk about the final phase of life, it can be a great gift to our family and loved ones to prepare them in advance for the sometimes difficult and distressing decisions that must be made. Here you will find information about planning for your care if you can no longer speak for yourself by using 'Advance directives.'

Advanced directives are a way of making your voice heard when you can no longer speak. They allow you to appoint someone to make your health care decisions for you when you no longer can and to administer or withhold treatment and procedures. Advance directives are not just for the elderly. All people who desire to direct their medical care in the future should complete an advance directive.

 
Associations and Organizations
Out-of-state referral sources for hospice, palliative care, pediatrics and other end-of-life associations and organizations.
 
Caregiver Resources
This section includes the following links to caregiver resources: Caregiver Action Network; Health Insurance Information, Counseling and Assistance; Healthcare Communication Project; and Todays Caregiver online magazine.
 
Children's Hospice & Palliative Care
In New York State, approximately 2,200 to 2,400 children and infants die each year from congenital and chronic conditions, and an estimated 20,000 children are coping with life-limiting illnesses. Pediatric palliative care addresses serious medical conditions, including genetic disorders, cancer, prematurity, neurologic disorders, heart and lung conditions and others. Palliative care also relieves the symptoms of these diseases, such as pain, shortness of breath, fatigue, constipation, nausea, loss of appetite and difficulty sleeping. In short, it helps the child and the family gain the strength to carry on with daily life.
 
Developmental Disabilities Hospice & Palliative Care
Despite being a well-established option for the general population, hospice services remained largely unavailable to persons with developmental disabilities. In instances where hospice staff had worked with people within the developmental disabilities system, it has been a more positive and dignified end-of-life experience, for the person, their family members, friends and other caregivers.
 
Health Insurance Portability and Accountability Act (HIPAA)
With the new Federal laws in place regarding HIPAA standards, hospice programs will need the information to become compliant. Click on this category to get model extension forms, copys of the bills and other resources.
 
Hospice Medicare Benefit
Coping with a terminal illness can be a difficult enough experience without having to worry about pain management, medication costs, and assistance with caregiving.Surprisingly, many Medicare beneficiaries are unaware that Medicare's all-inclusive Hospice Benefit is available to assist dying patients and their families with these issues at the end of life.

Hospice care offers a team-oriented approach to medical care, pain management, and emotional and spiritual support tailored to the dying patient's needs and wishes. For patients who qualify, Medicare will pay for this kind of comprehensive end-of-life care delivered at home or in a hospice facility. The Medicare benefit includes many services not generally covered by Medicare and more than 90 percent of the more than 2,500 hospices in the United States are certified by Medicare.

 
HPCANYS Allied Member Services
Click here for a list of HPCANYS' Allied Members including a description of their services as well as their contact information. If you or your organization are interested in becoming a HPCANYS Allied Member, select the "Join Now" button on the home page ribbon for information on becoming an Allied Member or contact us at info@hpcanys.org.
 
Medicaid
 
Medicare
 
NYS Department of Health & Office of the Aging Resources
 
Palliative Care Information & Resources
HPCANYS places a strong focus on public engagement and community outreach to assure that all residents of New York State are provided information and resources about what palliative care is, how it may benefit them or loved ones who are living with a life limiting or chronic illness. Here you will find updated information, current news and resources, answers to common questions and the ability search for a palliative care provider in your geographical location.